When the bipolar doctor may be wrong

=>PLEASE FORWARD TO FRIENDS, FAMILY AND LOVED ONES <=
Hi,

How’s it going?

I really have to make this short today because
I have a million things to do.

I was reading over my blog over the last
few days and I saw someone who wrote:

“My son was diagnosed as being bi-polar
two years ago. The doctor, a psychiatrist,
put him on medication. Finally, I got the
doctor to change his medication. I could
see a difference in him almost immediately!!!!
That was over six months ago! He still has a
little rage inside, but his “episodes of anger”
don’t last as long.”

When I was reading this, I was excited for
this person’s success.

A few thoughts came to mind.

First, I don’t think most people realize
how just small medications in a treatment
plan can make a big impact.

With my mom, just a small change, once
made all the difference in her moods.

Secondly, I don’t think bipolar supporters
realize that someone times the doctor
may be wrong or thinking that your loved
one is doing better than they are.

This happens because maybe your loved one
doesn’t tell the whole truth nothing but
the truth when asked, “how are you doing?”

Also, with the fact that most times, doctors
don’t see what is really going on with your
loved one.

It’s not their fault it’s just “the deal.”

Anyway, it’s the bipolar supporter’s job
to help the doctor treat a loved one in
the best possible way.

Even though my mom has a great doctor,
there have been two occasions in the last
3 years that I had to step in and persuade
my mom’s doctor that treatment had to be
changed.

In my courses/systems I have lots of
worksheets and checklists about
helping yourself with bipolar disorder
or helping a loved one when you are
trying to explain to a doctor that
the treatment plan may be off.

SUPPORTING AN ADULT WITH BIPOLAR DISORDER?
Visit:
http://www.bipolarsupporter.com/report11

SUPPORTING A CHILD/TEEN WITH BIPOLAR DISORDER?
Visit:
http://www.bipolarparenting.com

HAVE BIPOLAR DISORDER?
Visit:
http://www.survivebipolar.net

I made these worksheets and checklists
to be used as a tool to help yourself
or communicate information accurately
to a doctor or therapist.

If you feel that your loved one’s medication
is not right, you can:

-Fill out the worksheets

-Bring them to the doctor

-Point out what you are seeing including
days of the week and time

-Explain why you think there
should be a change.

Build your case that is persuasive
so the doctor listens. In my courses/systems,
I talk about how to do this at length.

It’s hard to explain it all in a simple
email but here are some general guidelines.

WARNING!!!!

Do NOT bring print offs from the internet
and plant them on a doctors desk or
fax them to him/her.

This is super annoying for the doctor and
winds up making them mad at you.

I hear these stories of people going to
websites and printing 30 pages off and
then circling certain spots and then
throwing it at the doctor and saying,
“look at that!”

That’s a good way to make a doctor
mad.

Also, do NOT expect results too fast AND
don’t expect your loved one to have perfect
moods. NOBODY does. Meaning, if someone
cuts your loved one off driving, he/she
will probably be mad, medication doesn’t
fix that. If that were the case, EVERYONE
in New York and New Jersey would be on medication
because everyone is mad about “stuff”
once a day in the northeast 🙂

So be reasonable.

I have to run, catch you tomorrow.

Your Friend,

Dave

P.S. Want your own copy of these daily bipolar
emails sent to you for F.ree? If so, visit:
http://www.bipolarcentral.com/register3

P.P.S. Don’t forget to take a look through the
different programs I’ve put together… each one is designed
to help you with a different area of bipolar disorder whether
you have it or you are supporting someone with it.
You can see them all and get the details by visiting:
http://www.bipolarcentral.com/catalog.asp

P.P.P.S. Check out my F.ree blog with copies of emails
that I have sent in the past and lots of great
information for you:
http://www.bipolarcentral.com/supporterblog/

P.P.P.P.S Check out my F.ree podcast. Hear me give
mini seminars designed to teach you information
you can’t learn anywhere else.
http://bipolarcentral.libsyn.com

  1. I was unable to post a comment on your email regarding the ‘make fast cash’ book, so I’m going to do it here…… Are you SERIOUS?? If I had 20.00 for a book, I wouldn’t need to send away for the book!! You’ve done all this ‘not for profit’ work (and I DO appreciate your work, please don’t misunderstand) but now, suddenly you want to profit from something when most of us are living ‘hand to mouth’…. I’m so disappointed in you and very disillusioned.

  2. Hi,

    Please note, there is a 100% no questions asked money back guarantee on everything that I offer. I think with this particular product there is around a 1.8% return rate.

    The reason why I have to charge for stuff is simple–I have an entire staff of people to pay now in addition to massive advertising costs. I went through explaining this several months ago and I guess I need to send a follow up email.

    Someone came to me the other day and wanted me to send out a new free service that they have for people with bipolar disorder. I said I had over 175,000 people sign up for the list. They also asked me, “hey, I notice you charge for stuff, why don’t you give it away?” I laughed and asked, how do you think that I got 175,000 people on my list? The person didn’t know. I explained about how much it cost and they were amazed. They had zero people on their list because they never buy any advertising so they didn’t really understand that it did cost money.

    Dave

  3. I understand you have staff to pay, etc and you have a money back guarantee….and, granted, 20.00 is a wonderful price for such information but I wonder how many of us have 20.00 to send for book in the first place?

  4. To Pastorvic,

    I don’t want to debate this. But I am just wondering, what would you do if you were me? How would you run it all? I am open to any and all suggestions that make sense.

    Dave

  5. I’m not sure what I would do,if I were in your shoes Dave, but possibly try to find some investors?…(someone who’d put up the money to pay for the printing, etc.) I know some other pastors who have printed up books and pamphlets and gave them away because of investors donating the money. I admire the work your doing, dave and I agree there’s no need to debate this. We can ‘agree to disagree’. Thank you, again for your time.

  6. Had to comment on road rage. My husband suffers from it all the time and my daughter is 21 and I have persuaded her to not get her driver license because she has road rage while sitting in the back seat! I have her in agreement with me that the last thing she needs to do is drive. Although we live at least 12 miles from the nearest job and not having a license is definitely a hindrance since there is no mass transit available, only $20 taxi rides that will eat up anything you earn here anyways since we are a Right To Work, which translates into a “no-pay state” you are lucky to get paid the Federal Minimum wage here. I agree that Bi-Polar and driving is a bad mix anywhere. And just to let you know that all drivers in the West are mad all the time too. lol

  7. My husband was diagnosed bi-polar butafter much reading I really feel his real disorder is narcissistic personality disorder. Do you see any connections in between these two personalties disorders and how do you handle them?

  8. Thanks again for your helpfulness.
    My daughter(13)is in the midst of being diagnosed….DID, OCD, and Bipolar thrown in. She is having alot of trouble, but is finally accepting the fact that she needs and wants help. The meds seem to be making her worse. Did your Mom get worse, before her system “took” to the medication that worked? Any hints as to make her believe that what is happening to her is normal? Thanks

  9. Re: computer printouts – while I agree it’s tactless to throw them at the doctor as if they haven’t done any research of their own my doctor (who is nearly 80)says doctors should just get used to the fact that patients can and will look things up on the Net.

    On the whole he prefers the better informed patient that results.

  10. Dave

    With regard to supporters input into the pDoc treatment regime for the patient, I am surprised this is (or seems to be ) so easy. In the UK, the patient-doctor confidentiality thing is so strict, the Doc’s won’t even tell the supporter what it is they are dealing with! A friend of mine was dealing with an oddly behaved, often irritable, aggressive, and frequenty violent husband. They all knew SOMETHNG was wrong, because of his behaviour and because he was hospitalised for a period in a psychiatric unit, and they knew he had meds. They also knew he didn’t usually take the meds! The pDoc would listen when she told him about the meds but he said he was powerless to do anything unless the guy did something spectacular that warranted him being forcibly taken into hospital!

    He finally killed himself. It was only at the formal Inquest into his death (that’s a legal court, where a Corner rules upon the cause of death – e.g. accident, unlawful killing or suicide) that she found out what wass the illness (s) husband was dealing with! The doctor wouldn’t tell her, and he still didn’t then! The facts were only revealed in open Court as evidence for the Coroner. In other words, she ony got to know when any other John was in the public gallery, too! In fact, he had a cocktail of problems, including psychotic BP and schizophrenia. What a mess! How could she have a clue to what to do for her family or how to help him without knowing what was the problem? And she couldn’t find out because the Docs were bound by their duty of confidentiality, when a patient’s illness can only be revealed if the patient gives permission for this to be done. Obviously, he didn’t.

    Do you not hit this kind of probem in the US, or are your docs a little less strict with their standards of confidentiality?

  11. David said, “I don’t want to debate this. But I am just wondering, what would you do if you were me? How would you run it all? I am open to any and all suggestions that make sense.”

    You’re not asking me, Dave, but what I’d do would be convert this business into a Not For Profit organisation. That would immediately deal with the critics who (unfairly) accuse your organisation of making a profit out of other peoples’ suffering. It would also help attract people who are put off by the commercial aspect of the service. At the same time, it would not harm you or your staff financially because they and you could receive just the same employee benefits and salaries as you do now. Why, you could also charge your expertise to the NFP as a consultant working from one of your other businesses – e.g. marketing, professional “knowledge”, etc. I’m not sure how your tax laws operate where you are but, in the UK, if a NFP organisation is a registered charity, there are tax benefits for the organisation, too.

    I hope this idea helps.

  12. i was greatful to you mr. david oliver… i’d never been to medication with a doctor or pyschiatris… i just read your stuff on my email and it help me out…

    thank you very much god bless you! your such a nice person….

    now i can see a little change onmy self… i can say that i’m a rational thinking now unlike before…

  13. My husband just beinning taking tegretol. Seems to be somewhat sleepy during daytime but not sure if this is because he doesn’t sleep well at night. Psychiatrist changed meds for sleep today and said the dosage for mood stabilitiy was so low that he doubted it making him sleepy in daytime. What do you think. For me sitting by all this can be quite scary. Thanks! I need encouragement, too.

  14. GRAHAM, While I believe that there should be doctor – patient confidentiality, I agree with you that it’s too extreme in the UK. My ex-husband and I had the same GP, a very nice man who took the time to listen and occasionally acted as a counsellor. However, when I told him about a variety of bipolar type symptoms my husband was displaying and urged him to test my husband. The doctor said he could only do those with my husband’s consent. As he never gave his consent and insists that there is nothing wrong with him, he never received the help i believe he needs.

    This is slightly different here in Ireland. As a wife (or next of kin)I would have the right to “send the doctors after my husband” and get him assessed. As a girlfriend I would only have those rights if he did something dangerous to someone or himself. Confidentiality is much more loose here, which isn’t always an advantage.

  15. Before my first “nervous breakdown,” I was never one to take pills. Being a “mental patient,” of course, we are expected to take our meds.

    Now, everyone, even “normal” people, have “moods.” What I’d like to know is, what is the difference between a “normal” mood and a bipolar mood? Under the medications, I have an antidepressant, a tranquilizer, and antipsychotics. Like your example, I’m liable to “get mad” if someone cuts me off in traffic. But – what if my boyfriend pisses me off and I stay mad at him and can’t let go of that mood? Do I take a pill?

    Where does a justified mood differ from a bipolar mood? Just this morning, I woke up in a depressed mood, with NOTHING to be depressed about. This feeling lasted until mid-day, when I began to feel better. I’m not elated now, but I feel a little “high.”

    I’ve never thought of myself as a “rapid cycler,” but perhaps I’m “maturing” into one. When I don’t know where a mood is coming from, I can’t analyze it. I “live” in my brain; I am somewhat cerebral in that way. Things HAVE to make sense to me. Unfortunately, the “illness” DOESN’T make sense. It’s kind of like the old joke about the weather: If you don’t like it now, wait a minute – and it will change.

    Right now, my therapist tells me I’m a highly functioning person with bipolar disorder, and most of the time, I am. It’s just these darn moods…

    BIG HUGS to all bipolar survivors and those who love them. Stay sane in this crazy world. Peace.

  16. Thanku for the help extended so far. I Live in a country where your book is not available so i have asked someone else abroad to order it for me. I think people go to your site because they believe that u will selflessly help them and not because they think you r making money out of peoples illnesses…therefore because u understand there situations. because of ure mom i expect u to be compassionate, understanding, and helpful. Ive been reading ure mails for a long time now and i thought i ought to say sumthing now. at the end of the day one has to be answerable to ones own conscience. even if one is effected by the illness one has to sometimes become ones own caretaker aswell. so it does not matter whether one is a sufferer or a supporter at times its one and the same…i look forward to sumthing substantial in ure book. thanks..naveed

  17. 84ps. Don’t forget, depression makes people tired and sleepy. Also, after even a hypomanic phases, people get tired and sleepy because they over run their energy levels.

  18. Suzannne wrote: “What I’d like to know is, what is the difference between a “normal” mood and a bipolar mood?”
    My pDoc said of this, “Let me be the judge of what is normal and what is not.” Arrogant b####! This arose because I have long noticed in myself a slow, creeping, but sure tendency to become increasingly quick tempered, sometimes very aggressive. This was normal, he saud, because I have 9 year old boys … what a prat! Sure, the kids sometime press my buttons but I KNOW BEING THAT ANGRY isn’t the real me. I have always been a passive kind of character, generally patient, slow to anger. I sometimes tyhink, what will it take for him to realise what’s happening is NOT just because I have kids. I now in myself what has been happening is something other than just being a Dad.

    Suzanne also sid: “I’ve never thought of myself as a “rapid cycler,” but perhaps I’m “maturing” into one. When I don’t know where a mood is coming from, I can’t analyze it. I “live” in my brain; I am somewhat cerebral in that way. Things HAVE to make sense to me. Unfortunately, the “illness” DOESN’T make sense. It’s kind of like the old joke about the weather: If you don’t like it now, wait a minute – and it will change.” One word repsonse: SNAP! Same thing is happening with me.

    BTW< that self analytical stuff, that just might be Dysthymia. It's typical for Dysthymia to be very cerebral, self analytical because Dysthymia makes one more of a watcher of social occasions than a participator in them.

  19. hi, my name is krystal and i have been receaving your e-mails for about 3 weeks when i got diagnosed with bipolar. they have helped me alot… thing is i went to mhmr and now im on a waiting list for meds and stuff… so knowing i have bipolar and doing something about it are two seperate things right now….being that i dont have insurance…. but i read your e- mails everyday and i try to find ways to help myself. your e- mails have helped me so much!! i just want to thing you from the bottom of my heart… as i sit here waiting on the waiting list to get help you show me the light!!!THANKS!!

  20. Hi David, It would be nice if the doctors had bipo or someone they live with had it. So they had to deal with in a more intimate level, perhaps they would care more. Thanks, Karen

  21. I have been seeing the same physcologist for 13 years now and my main problem with bipolar is that I am usually chronically depressed. I have also been taking the same medications for a couple of years now, which I told my doctor is not working for me.
    Because the medication hasn’t worked, I have just finished 10 ECT sessions.
    My motto is “if you always do what you’ve always done, you’ll always get what you got”.
    Since the ECT sessions, my doc has put me back on the same medication I was on before the ECT.
    I have asked her to change my meds but she will not change the Lamictal, which has been the constant medication, and I don’t think it is working anymore.
    How do I get through to her that we need to try something else?
    Also, should I be seeing a doc in conjunction with a nurse practicioner?

  22. Danielle.
    Remember, you are an expert about your own illness. You know it better than anyone, even your docs. You describe to them as best you can what you feel and they react to that with meds and/or therapy. But they don’t know what it feels like to be you, or how you feel. They do not know how strong or mild are the sensations you have, the depth of your depression or the heights of your mania. They c an observe them but they don’t feel them. Only you do that. All they can do is make an educated guess judging from their observations ad what you tel them. Therefore, only you really know if meds are working. You know if you are feeling better or worse. They may suggest “give it more time” if the meds don’t hit the spot immediately. But when you HAVE given it more time, you know yourself if they are working. A guy I know on another site had mood swings up and down. He liked the mania. He wasn’t so keen on the depressions! His pdoc changed the meds and dose. Now he doesn’t get the mania but he’s perpetually depressed and suicidal. The pdoc thinks he knows best and won’t change the meds, not even the dose. So, the guy resorts to booze, and he’s now alcoholic. He really ought to have changed pdoc ages ago. But he didn’t and now the spirit has been knocked out of him. It wouldn’t surprise me if he checks out any time soon. And all because he didn’t accept that HE is the expert about his personal illness. Take control of this situation!
    To start, you feel the Lamictal, or the dose of it, isn’t working for you. That’s for you to say. Your doc should listen to what you think because it’s you who knows how you feel, not him/her! You are the expert on how you feel! So, what to do?
    Your decision. Personally, I’d have one last shot at (I mean, last word with!) the doc. (Don’t shoot him! Okay?!) Maybe even speaking to your family doc about your concerns. Failing that, you might consider seeing a different pdoc. After all, if your current doc isn’t listening to you, s/he isn’t working FOR you. You are (I presume) paying him/her; therefore, he SHOULD be listening well! You are not just the patient, you are also the CUSTOMER. As such you can choose your supplier of psychiatric services, just like you can choose your dentist or who mends your car when it breaks.
    You will find pdocs all have their own ideas of what works … change pdoc and the meds, or dose, often changes with them! So,
    As it happens I’m in a similar situation. I find Laprogine (Lamictal) is not working so well. That said, since the dose was put up from 150mg to 200mg, I’ve been significantly better for the most part. Having said that, last November, I had the worst hypomania I’ve ever had! Into Type 1 territory, I think. And THAT was on 200mg. But then, we can’t expect the meds to work for us all the time – there will always be breakthroughs from time to time.
    BTW, May I ask, what side effects have you experienced with the ECT? I understand memory loss is common. Is this your experience?

  23. I’ve been on 200mg of Lamictal for about 9 years. The only bad thing about this is I have the type of body that gets use to medications after awhile. Since I have been on the Lamictal as a constant, I truly believe that it is time to try something else.

    The ECT does give you memory loss. I forget everything that had happened for the previous six months. I didn’t even remember going to the hospital for treatment until the 7th session. I have to say that ECT did help but I am already back to where I was before when I checked into the hospital. Maybe I just need some booster treatments, but it has only been 2months since I received the initial ECT.

  24. Danielle
    Thanks for the feedback about ECT. I think I’ll a void that if it’s ever suggested – it’s memories further back than 6 months I’d rather forget! ;o)
    I know what you mean about “body that gets use to medications”. This is how it was with me and Prozac. It was while I was on these for about 10 years or so, I found my anger levels increasing to levels that scared me. That was whwn I switched to Cipramil, and that cured the problem for a while … Of course, (Of course?) I’ve not been taking Cipramil for quite a while.

  25. Graham,

    I understand what you mean when you write you would rather forget memories that are older than 6 months old. I have SEVERAL of those I would like to forget.

    I was on Prozac for a couple weeks and I was having horrible side effects. I would actually have out of body experiences where I was yelling at my mom and then felt completely horrible afterwards and apologized profusely.

    I found out yesterday that I am actually on 400mg of Lamictal. When I spoke with my doc yesterday she was kind of offended that I even mentioned changing from the Lamictal to something else.

    I also found out something very important that would have helped me A LOT!! 4 of the meds I’m on make you gain weight as a side effect. That explains the 40 lbs I gained in the last month.

    ECT treatments are not that bad. I just felt lost for awhile having the same conversation with people I had prior to the treatment. They were a little confused but oh well.

  26. Danielle,
    You may not know but some docs now believe anti-depressants on their own (like Prozac) can trigger mania in people. (This phenomena is unofficially called Bipolar Type 3.) When they stip taking the anti-depressant, the mania stops. (Trouble is, they become miserable again!) A theory about this goes that this effect only occurs with people who may have the inherent genetic “weakness” that causes BP, that these manias are signs that the BP may be emerging. Of course, some anti depresants are dangerous to people with BP anyway, because they can trigger mania or serious mixed episodes. Indeed, apparently even St John’s Wort is can cause mania.

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